Journal of Current Research on Health Sector (JoCReHeS) - ISSN: 2547-9636

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Abstract


Investigation of the Demographic Characteristics of Individuals with Down Syndrome and their Families, and Determination of the Knowledge, Emotions and Thoughts of Families (Ankara Sample)

This study was aimed at determining the number of individuals with Down syndrome attending special education and rehabilitation centers located in the central districts of Ankara, and to conduct a descriptive analysis of the demographic characteristics of the individuals with Down syndrome and their families, their medical problems, educational information and daily routines, as well as, the knowledge, emotions and thoughts of their families. In order to determine the distribution of the individuals with Down syndrome, 153 of the 161 special education and rehabilitation centers located in the central districts of Ankara were included within the scope of the study. Each of the Down syndrome individuals who receives services from centers in each stricts the total number were determined than the family members of 101 individuals with Down syndrome were interwieved at 22 of these centers using stratified sampling as to be proportional with the determined number. In the study, datas which were ochieved by using “Center Information Form” and “General Information Form” analyzed as frequencies and percentages. The study results revealed that 767 individuals with Down syndrome were instructed at these 153 special education centers and that the greatest number of individuals with Down syndrome resided in the Yenimahalle district. Interviews with the family members revealed that a certain amount of medical problems accompanied the diagnoses of the individuals with Down syndrome, that 44,6% of them attended school, that the average age of first attending a special education center was three and a half years and that they could independently perform simple housework. Furthermore, the families were not enough informed on Down syndrome and various social rights.



Keywords
Down syndrome, Individual with Down syndrome, Family of individuals with Down syndrome.



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